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Alright it’s friday august twenty-ninth i’m here outside kaiser mission viejo where dr. sharpe is this where i couldn’t see her my dermatologist down here so she wasn’t too happy about how i’m doing being on less cyclosporin i’ve been on a bag to 100 milligrams since august first and a few remember sex porn is my is the thing that is holding everything together
It’s the immunosuppressant that’s keeping my whole every my whole body’s reaction to everything down because i over react to everything but it’s a it’s a blunt hammer that affects everything across the board further letmein system so it also makes some really tiring so you can make me depressed but now that we cut back on it i’m reacting to everything again so
It’s not just my skin which is getting worse but also my asthma having a really hard time with asthma chem camera libri that well even taking the preventive medication for asthma doesn’t do anything okay my stomach’s only a lot more swollen so i’m eating only one or two meals a day because i’m not digesting the food that i’ve eating so there’s no place to put more
Food if i will if even if i force myself either just no place to put it because when the food is just stay in my stomach because my stomach and my intestines are too swollen to process food at a normal rate also not sleeping well and tired a lot and mentally not not well so i mean initially we were trying to cut back because thought i’d be doing the new pillow
Map trial but end of august well now it looks like it’s going to be november so she said so dr. sardos thanking should go back up on the cycles ouran for a least a week or two and then cut back on to the you know to you every other day and then for weaker than every third day of the week after that just to boost or just stop my body from reacting things for you
Know a couple weeks until and give my body a little breather because even though i’m still probably 19 uh i feel ninety-nine percent better than i was before it’s still definitely taking a big step back for where it was just a month ago so to just want to keep my condition stable until we know for sure what the new pill vapp trial what the requirements are what
Medications i can or can’t be on how bad or how good my condition used to be so so that’s the plan for now just changing the cyclosporine dose for helping it back up to 125 every day for about a week then every other day for a week then every third day the week after that and see if i you know if i’ll do a little bit better and give my body a rest
Transcribed from video
Increase Cyclosporine Dose for Eczema, Allergies. Health Degrading too Fast | Rare Disease 8.31.2014 By Jeffrey Lin
