this video I’m really fatigued, dealing with more light sensitivity, headaches/migraines, and full body aches. The adalimumab (amgevita) hit me a little harder this week, is it coz I feel crappy or because I didn’t hydrate and drink enough water? Idk, but I chat about it from bed, give my personal preferences and tips on taking your injections and hydrating. please consider donating to my kofi! ko-fi.com/artiecarden
Hi friends different self today but i’m not going to lie to you i fill up poo i feel like poo so i have fell out of whack for a while what do you mean you’re always out of work like especially bad recently my fatigue has been the worst um not the worst but pretty bad and my widespread pain has been to deal with basically and it’s making my sleep bad
Too so that makes all it worse i had my regular blood test this week and that includes some like vitamins you know like some bee bits b12 device iron and folates and all that you know to see if any of those might be why i am particularly tired at the moment um but i feel like it could also just be related to coming down on steroids either like because
You become dependent on them the longer you’re on them and i’ve been on them for over a year now um so coming off them can be hell um the actual like tapering process has gotten a lot easier since i’ve i have basically elongated it to two weeks worth of like up and downing the dose and so that my body can like take it without going into shock mode was there
Anything i could say oh and because of tapering and coming off and lowering my dose the more i feel my fibro symptoms again and that is like the widespread pain and possibly the this fatigue um so who really knows we’ll see soon-ish but also i just kind of had like a bad um time after my adolem injection on friday so i wanted to just talk about because i
Have talked about my as a little map the six months and like 14 months updates like of how i’m doing generally but i’m i can’t remember what specifically i’ve specified about how i take them and why i take them on this day or this time blah blah blah so i wanted to go into that with you this week whilst i’m feeling kind of poo so i’m filming this the day after
I had my adolumb this week for the most part i was told to just drink loads of water day before day of injection by other people in the ibd community so that’s what i do i drink a lot of water generally anyway but i try to make sure i drink loads like more than two liters i i’m kind of like a probably around two liters a day person anyway so i try to really
Make sure i’m definitely drinking that much like thursday and friday of the week is always like constantly going to the toilet because i drink so much water or like liquids generally and a bit less of like coffee and stuff so i feel like that might have been why i feel kind of extra poo this week is that maybe i didn’t get enough water in before i’ve been
Struggling recently with remembering to drink water if i’m sat downstairs in the living room because the the side is like behind me basically like where my side is right now it’s like literally behind me so because i don’t have any like visual prompts of like hey you have a drink and you need to have a drink or like you haven’t had a drink in a while i kind of
Forget if i’m doing things um so i feel like that might have been why this time around was a bit extra shitty i also just kind of always have done mine on a friday um i think that’s just when the nurse came round to show me how it all works and did the loading dose so i’ve just personally always stuck to a friday because i also have no life and i don’t have a
Job or like you know i don’t have a nine to five job in an office anywhere so i don’t it doesn’t necessarily ruin anything for me so i just kind of do stick with that i kind of do like early afternoon to evening time depending on the day um normally if i’m just around the house by myself doing a lot then it’ll be between two and four um and if it’s like we’ve
Been out for the day or something it’ll be some time like five or onwards um so like it is recommended that if you do have like kind of negative side effects after injecting yourself it’s best to do it kind of when you aren’t expected or going to be doing something like a few hours afterwards so obviously if you’re like a 9 to 5 worker do it one day after work
Like i said normally i don’t feel bad the next day like i’m not sure whether this is related to the injection or just something else because i’ve just had like a migraine today like just a really intense awful headache so i don’t know if that’s like ugh mental illness i don’t know if that’s related to be honest or it’s very possible um so if you experience
Negative side effects leading into the next day it is probably better to do it on the day before your day off or whatever but besides the drinking lots of water thing i don’t actually personally know or have heard of any tips to make it like make this negative side effects better or not as bad i want to quickly google this actually in case anybody else has said
Something after my first few um ever adeline lab injections i felt kind of like particularly grotty gorty is a five right grotty is a favorite word of mine at the moment i keep saying it um because it is just such a mood i feel grotty i feel grotty um what was i saying i’ve got distracted by grotty yeah i felt bad after the first two because they’re both kind
Of loading doses when you have crohn’s so your first one is four injections and your second one is two and i’ve not really felt as bad as i did this week like since basically yeah loads of people say it feels like a hangover i mean i wouldn’t necessarily say it feels like a hangover yeah i felt achy like my full body aches had kind of just like amped up quite a
Bit and like i feel the same today that my full body aches are just like a bit worse now this article is written by an ibd who doesn’t suffer with fatigue and brain fog wow what the is that like off off this article just didn’t even have any helpful advice can we love that for us um that was a really pointless article thank you i’ve also not picked up a single
Cold i had a slight infection in my fistula briefly that’s so helpful i also vape medical marijuana when my pain gets to a level where i’m not present anymore well wish that could be me i love being in the uk cool so yeah there’s literally nothing i personally have never found seen or read anything except from this is kind of like managing your symptoms as
They come but basically yeah i i think for me it was just related to the fact of i don’t think i drank enough water um and yeah i normally take it in that time frame of like early afternoon to late like to the evening sort of time because early early afternoon is when my energy levels start plateauing slash crashing anyway so like i normally feel kind of rough
After my injection but mostly just because that’s when my fatigue kind of sets in daily anyway so i sort of just take it around that time because i know i’m gonna feel kind of dodge either way um so like you know rather than ruining uh feel it when i’m feeling a bit better it’s just added on top of that so it’s fine so like normally it’s not an issue at all it
Doesn’t affect my sleep i don’t really get the hangover feeling i just kind of feel fatigued achy and like light sensitive um but i’m like i’m quite a light sensitive person anyway so i think it probably just exacerbates my natural light sensitivity so i tend to go and like hide in my room like i am right now but with the blind down instead and like watch
Or listen to some videos i felt like i had more to say but i’ve kind of forgotten what it is there’s also just something about being vertical like saying upright is just uses so much energy so like i just would like laying on my side um supported by million pillows and like my mattress is soft you know just a soft environment to be laying in but um yeah i
Just wanted to share that you know normally i don’t have many issues at all when it comes to taking adler mab especially since i changed over to um javita instead of the immorality brand i was on and also like since going up to weekly injections instead of bi-weekly um because i yeah a lot of my symptoms chilled out my inflammation is like under control at the
Moment in my blood results my fecal cow protecting has been like the same it goes up a little bit but all like up and down a little bit but it’s pretty much that’s kind of what my standard is at the moment is like around 150 which is um i’m gonna say low because i have been off of our local charts my local like hospitals only got like 600 which makes no sense
Because you can go up into like several thousand apparently i’ve been off of our local charts so who knows how high i have been in the past but i i’m kind of roughly around like 150 at the moment all the time um a lot of my like ibd crohn’s related symptoms um are like gone slash minimal so like i still occasionally get like stomach or like lower back cramping
Pain but like not for long and like way less painful and way more manageable than when i was like actively flaring before i was getting treatment my pooping is under control i yeah i’m not i don’t feel any nausea really or anything like that and a lot of like other scarier pains have kind of gone too i’ve not had any reoccurring issues with my abscess slash
Fistula so that’s fantastic that’s basically why i went on this drug i’m like until literally this week i would normally just need some chill time in the dark for for a few hours and be sort of fine by the evening again maybe it is also just to do with the fact that i am struggling with fatigue and widespread pain more than usual at the moment then maybe it’s
Just sort of aggravated it a little bit more than it would normally yeah i mean even though we’ve been in the debundment i have literally not had a single cold flu virus infection like that since i started my first immunosuppressive medication in 2019 the only infection i’ve had was my abscess and the sort of like following infection a year later that was like
Short-lived and went away with some antibiotics thank god so like i really think it is a lot more manageable than people realize like uh and also you know with the addition of masks um hand sanitizer you know like a lot of like hygiene related things being talked about a lot more and encouraged a lot more have probably helped in a lot of ways i mean obviously
Because it just directly helps prevent you from picking up gross like bacteria from strangers don’t wash their hands but also like just people are a bit less likely to look at you weirdly kind of i mean it definitely depends because i feel like there are some people who now look at you like a mug because they don’t think it’s real or they think it’s over
When it’s not so but i’m still wearing my mask i will fight you if you come near me i’m just sorry i also wanted to quickly throw in like some of my top tips on how i’m drinking more water in those two days to prepare for my injection so on these days i make an effort to take my vitamins and minerals and supplements so for an example these ombre vitamins
There’s quite a big mixture in here there’s magnesium calcium iron like omega fats b vitamins d vitamins c vitamins and turmeric turmeric tablets yeah so because there’s quite a lot in there that helps me drink like maybe 500 milliliters or something like that my other tip is kind of what i’ve already mentioned but bringing a water bottle around with me so it
Can kind of literally be anywhere like i said before that if i don’t see it then i don’t have any visual prompts to remind me to drink water if it’s in a bottle with a cap i can literally lay it in front of me or sit it next to me and i will at least have that kind of prompting that it’s there to drink yeah and also like generally if you can keep it in view for
This reason when i get really tired of drinking a lot of plain water i then sort of rotate onto squash flavorings i mean some people put throat in their water for flavoring you can do that too i just kind of stick to squash because i tend to drink a lot of water it’s a little bit easier to just throw in some squash and then my sort of like last tip is know the
Measurement of the glass bottle whatever cup you’re using um because then you can kind of keep track of like what sort of threshold is it that makes you go to the toilet more often but also helps with the after effects of asthma and male injections so i’ve got a bottle that’s a liter that i often use um i have a 500 milliliter glass i use quite often as well
You know things like that um and also like pretty basic tip check your pee first thing in the morning i’m always very dehydrated but like with these two days of the week where i drink a lot of water it does become a lot like so so clear um so that’s when i know that i’ve definitely had enough to drink that day so those are just my quick tips on how to drink
More water on these days of the week try to avoid caffeine it’s dehydrating or like maybe limit how much you drink i tend to only have maybe one cup of coffee on the day of my injection as well that’s it thanks for coming to my top tips you know i just wanted to share with you how i feel this week how i normally feel and get on with my injections i normally
Make videos when i’m ready for them so i kind of just wanted to make something that was a little bit more like hey this is how i feel right now i am tired my brain do not work and i do not have the same manic energy that i normally have in videos um so yeah thanks leave a like subscribe to my channel check out my other videos i have loads on chronic illness
Stuff um leave a comment down below let me know if there’s anything that you specifically want to know about at luna map i guess you know are you one of them are you going to be on it or are you debating going on it do you know somebody on it you know just you’ve got any questions leave them down below my hand is going dead uh passed away i have passed away
Oh my god is my arm switching oh hey there ahoy um yeah that’s it from me see you next week bye
Transcribed from video
How Do I Feel After My Adalimumab Injections | Hydration Tips & Humira Hang-over By Artie Carden
