Q&A on why I became medication free.
Hi welcome so much more fun hey guys welcome to another video apologies in advance by the way if it sounds like someone else is in the room with me just kind of talking away they’re not it’s actually my neighbor who lost half every phone call outside and her garden is just there the noise travels amazing how far travels but it does let’s talk about me and why i
Came off medication so this video goes hand-in-hand with the blog post that i wrote in recently on doubled over dhoby ghaut in a single blog check it out i want to see you check it out there’s something that is very topical to my experience with inflammatory bowel disease right now so i do get a lot of people on my instagram asking about how i became medication
Free and why i’m now off medication and the implications of that oh my back got such a bad posture best way to do this is just to go back through the archives and find real questions that some people have actually asked me and my answers to them technology is so great i guess the first question was why did you come off medication is that’s a great one and it’s a
Very personal one as well so just just just start by saying that in no way do i endorse a medication free lifestyle i’m advising anyone to do it or kind of follow in my footsteps crohn’s and colitis is a really personal experience and a very personal journey my body is completely different to someone else’s and so what works for me really might not work for someone
Else and vice for self so yeah please don’t think that this is like oh tips to be meds free because it’s not it’s really really not and if that’s why you hear this video get off get out of here i can’t help you with that similarly i’ve got absolutely no issues with medication at all i think people presume that because your medication free therefore you’re really an
T meds and whatever think medication can do wonderful things for great people so just bear that in mind so we don’t have any nasty comments of which i’m sure i’m gonna get some anyway but just hold this back okay it’s a bad question one why did you come off medication so i came off medication because it just didn’t sit right with me anymore and i know that sounds
Really airy-fairy but it did and i had been on a styrene for i think eight months so quite a while and it made me feel great in terms of my crohn’s so i had barely any stomach problems i was feeling great i was able to eat whatever i wanted and then i don’t know what it was i kind of had a bit of a light bulb moment where i thought is this just masking the issue
I’m sorry i was really uncomfortable with putting tablets and chemicals and drugs unnecessarily into my body and you might say okay but they are necessary because he needed them to fix you which i did and they did but i thought well is there an option for me to try and do this somehow without medication you know i’ve seen people who have done it and i thought
Okay well i’m in some form of remission right now so now is the best time to try if i want to so that was one reason and the second reason was aci preen was just making me sick in a different way so it was really masking my gut issues very well well done is i thought i mean he did a really good job at that and i felt great and i ate what i wanted and i drank what
I wanted i did what i would but hey that freaked me out a bit because i was like i don’t know what’s actually going on in there because i don’t fear anything it was like they’d been desensitized to the whole crohn’s thing i thought i was not wasn’t actually none i could feel everything thought i was having no bad symptoms bowel wise and so i would do whatever i
Wanted and that freaked me out because i was like i don’t know if i’m actually doing more damage in the long run because i can’t see it and i don’t know it said that was one reason and another thing is i was just very unable to fly all illnesses because it’s a immunosuppressed so absurdly suppresses your immune system and there was it sounds pathetic but i like
Had a bit of a call and then i lost my voice for well over a month that doesn’t sound like the end of the world but i live she couldn’t math for about two months i’ve got quite a breathy laugh it’s not cute at all but it was so saw that i was like it was terrible or to see up so terrible and it wouldn’t go away i remember i went to hospital don’t and in fact a
Regular appointment but i was like and i’m very concerned about it you know my pharmacist almost laughs and she was like wrong you know it will go i’m sure it’s just an infection that you’re taking a bit longer to fight off but two months it’s very long time to have lost your voice and stuff like that i just thought yeah this isn’t for me i’m not about this life
Anymore because i’m following on from that what medication we want so i kind of just spoke about that whoopsie i think he sings through as i was on a thigh preen i was on 75 milligrams a day which was a drop down i started on 125 and they put me down to 75 because 1 to 5 was do much they’re meaty but before that i was literally on and off pred and the other steroid
Beginning with b but i can never pronounce i send it back and forth different than steroids mixed with a circle which is just like her anti-inflammatory medication like the kind of most basic one they can put you on and so it was obvious that i needed to be on something stronger at the time because i was having terrible flare-ups constantly and that’s when i had
My worst one in december 2016 it was in a me and our susan and lola blood and i was just so sick so sick which is why i don’t need to talk me in the first place how do you manage now that’s a great question it’s a really good question so i manage now by approaching my life more holistically which sounds ridiculous i just try and look after myself a little bit
Better than i would and i kind of don’t really have a choice because now i’m able to see the effects of what i’m doing so just before i decided to become medication free any anything i wanted i was a meat-eater a lot of junk food and i had a terrible diet like honestly terrible and just before i came off i decided right i need to clean up my diet a little bit i’ve
Done some research and i think i know what does and doesn’t make me feel good so i cut out dairy and i’m predominantly well i’m completely vegetarian i try really hard to be vegan sometimes i slip up i’m very good at giving into temptation i have zero willpower absolutely not so what’s the question so yeah i switch my diet and i was like right no only in no more
Dairy and let’s just see how that makes me feel i’ve been doing this diet and off medication for seven months now feel fine genuinely feel pretty good it’s interesting because you know i like that i can see now what’s happening in my body what i like i can manage it by knowing what’s going on so rather than kind of guessing that everything’s okay you know absolute
I said i still eat a lot of crap basically but instead of being like well good more i’m fine and literally doing that and now more like very different but i in the corner and so yeah i kind of feel the repercussions i like to know what’s going on with my body and i can track it that way also something that i was a bit nervous about managing is i get really bad
Arthritis with my crohn’s disease like it is so painful kind of unbearable sometimes you feel like your whole body is sore and achy and anything hurts i decided to get acupuncture which really really helped actually stopped having acupuncture because it was very expensive quite pricey as much as i would love to say that i could afford to do that weekly right now
I cannot so i think it really helps but unfortunately that’s not kind of long-term for me at the moment that sounds kind of right question 4 do you feel better good question yeah i think i do well you know what that’s a no how how do you manage better i felt perfectly good on medication i feel perfectly good not on medication they’re not comparable at all i did
Feel good i continued to feel good i now feel good in different ways because i feel like i am doing what makes me happy and what’s right for me and for my body so in that sense yeah i feel better but i think that’s very subjective to what your view is and better jeez would you ever go back on them i’m guessing them his medication yeah of course i would go back on
Medication if it was necessary i think it’s really important to just stress that being medication free doesn’t mean that i’m anti medicine so right now today i feel good and like i don’t need medicines and that’s fine but tomorrow or next week or next month or next year something might happen something might develop or get if it were and it will be essential for
Me to go on medication and i’m so fine with that i’m so open to that this is more like a personal kind of development thing oh my god i sat like a self healing book i’ve read too many of them clearly but this is a personal journey and this is a personal decision it’s not because i’m not a moral high-ground or anti medication it’s because it’s what i feel is best
For my body right now but if my doctor turned around to me and said this is not good at all all you need to seriously think about going back on medication or a different medication yeah of course i wouldn’t be like no no no don’t wait i hope no now of course i’d be open to it and very very open to it loads of my friends who have ibd and i say friends because it’s
An online community i don’t actually have anyone physically who i see that often who has crohn’s thought so many people who i speak to you are on meds that have basically saved their life or transformed them life or given them a life from inflammatory bowel disease and so why would i ever say no i winner take meds again just today i’m not i think the moral of this
Video is to just do what’s right for you i think that’s the most important thing as a community of people who are going through the same thing i think it’s so important to if raised judgement and be supportive of one another as long as you’re happy and healthy and feel comfortable and positive with what you’re doing so yeah i hope that is somewhat helpful if it’s
Not i’m sorry thank you if you’ve made it this far to the video and not skipped or x to it you’re a babe you can come again wanna see watch next time stay well stay healthy and make good decisions and if you don’t make good decisions please make sure they’re funny thank you this hurts my back so much gently does it change waffles thanks guys
Transcribed from video
Crohn's Disease; Why I Stopped Taking Medication By GUT INSTINCT
